So, Ava's MRI/MRS results came back. They are normal. However, there is a warning that there were technical difficulties and due to Ava's size they were not able to view Ava's Basal Ganglia. They could only see her frontal lobe. However this was not an issue last week for her MRI. Nobody mentioned such issues to Ava's nurse who was with her the WHOLE time.
The mystery about the muscle sample is that someone at AI in the lab mislabelled the sample with our deceased son's name. So a new sample or that same sample relabelled is going to be resent to Baylor. They did not send the entire specimen so there should be enough to do what they need to do. It doesn't matter, we would not have Ava endure another biopsy.
No results on the CSF (Cerebral Spinal Fluid) studies. Tick tock tick tock.
Ava is content today. Moving a bit more. Not opening her eyes a ton. Soon Allan will be able to hold his baby for the first time since Nov. 10.
Anyone getting a clear message that we are not supposed to know anything right now? Yes we are upset and frustrated. But we have peace. We are (The women who can to follow up is the same one who sits at the front desk and smiles at us every morning. Today I found out that she's been praying for Ava too.) God is cool.
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Dear Amy and Allan,
ReplyDelete"But we have peace." Those four words you write are so meaningful. Pastor Dave always signs his e-mails with "Be at Peace." It is hard to find peace in the midst of such trying circumstances. Pastor Dave has taught me that knowing that God truly loves us and cares about us brings a peace within like no other. My prayer for you is that you continue to feel this peace.
God's Blessings and Love to All of You,
Merrie Lee
Hey Amy and Allan,
ReplyDeleteSounds like to me that you're being stalled from making an type of decisions for the most part, which really could be a great thing! I feel positive about it in my heart, with the "Sweet Little Miss". ;-) Try to get some rest, and see you soon! I say a little night time prayer with Ava when I visit her on my breaks.
You are always in our thoughts and prayers,
Holly and The BBMT Crew :-)