Holding Patern

Knowing that Ava was not on the schedule for Muscle Biopsy attempt #3 until at least noon today, we elected to sleep in and spend some time with our other bugs. Elaina ended up in our bed sometime in the middle of the night. She is drippy and running a slight fever that is well controlled on children's Motrin. We had good snuggle time with all three in the morning--. Emily is also a little under the weather; Alexa should be soon to follow. Medication suppressed fevers aside, we had some good and much needed family time. Amy made scrambled eggs and when we got ready to sit down Emily said "Mommy- are you going to eat breakfast with us!?" If we could bottle that, it would get us through most any day.

Upon arrival at the hospital, Ava decided she might need to wake up and warm our hearts. She opened her eyes for a good period of time and was responsive, smiling, and almost playful! It's hard to describe how good this was for us! My poor little girl has been so tired and wiped out it's seems like forever since we've seen a glimmer of her personality. I think she knew we needed some cheering up.

As for the biopsy... as I said she was on the schedule for noon. It is now 1:20... I'm confident it will be any time now and that it will actually happen today (if it doesn't, it won't happen at all because we will be pretty much done with the whole thing at this point). We are used to waiting. Not necessarily good at it, but used to it. So, here we sit.

Pray for patience; pray that Emily and Elaina will feel better and that Alexa might be spared; pray that Amy and I will not get sick; and praise God for scrambled eggs, big hugs, and open eyes!

Peace,
Allan