Four Little Ladybugs

Ava decided to let us know that she is not too keen on weaning her vent settings down yet. She is still on minimal support, but needed to go up on the number of breaths she required a minute. She was holding her own, but as the day wore on she was showing signs of tiring. When we finally left tonight, she seemed much more comfortable. She was also on 5 breaths a minute less then when she got to the PICU.

We are trying not to let that get us down or read too much into it.

Tomorrow we will know Ava's repeat lactate level and the results of the MRS. Ava will also have an EEG. As expected, we are concerned at the prospect of hearing things that we don't want to hear or know.

I pray that she has a restful night and can work on getting stronger throughout her whole body. She is a sweet baby.

The girls will spend tonight with Allan's parents and then my parents will take over for a few days. I so wish they were home so I could kiss them good night and help them get ready for school in the morning.

It was nice to see all our ladybugs together today. I noticed that the bigger set were having a harder time today. They are worried for Ava and miss her terribly. They miss us too. We certainly miss them. They are sweet girls. Observant too. Alexa immediately wanted to know why Ava had another tube. I didn't know what she meant at first. Then I realized that she was talking about her feeding tube.

Tomorrow is a new day. I hope it's not too draining.