This is a picture of the bandage the surgeon made for Ava. I really just thought that is was a sweet touch. He was just as kind when he came to talk to us. What I thought was really sweet was that he kept saying that he hopes we get good results.
Ava is now at a point where she can be fed and needs to get stronger. They are going to try and wean her off the vent soon too.
After the Ava I saw today I think she can do it. The Ava I saw yesterday has me concerned. It is all up to God and Ava. With His help she can. I really do hope that is in His plan. I would love it if it is. I would love her to get stronger and come home. I would also think it's cool to show up the know-it-all resident who is assigned to Ava.
Her blood transfusion is going well. I hope this helps to give her energy as well. The nice thing about the transfusion is that the Geneticist can't make her have any more testing. We were done anyway.
Please pray for Ava to get stronger and to have God's strength. The following is our prayer for her. Will you pray with us?
Isaiah 40:29-31
He gives strength to the weary and increases the power of the weak. Even youths grow tired and and weary, and young men stumble and fall; BUT those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
We are absolutely praying with and for you about precious little Ava. Your children are darling! Your hope in the Lord is amazing and inspiring. Thank you for sharing your lives and hearts with so many.
ReplyDeleteWe are praying!!!
ReplyDeleteWe lift you up many times a day! We will continue to bring your whole family before the Lord. You are loved!
ReplyDeleteSharon
You and your bugs are in our prayers constantly.
ReplyDeleteChristine
Dear Bentons,
ReplyDeleteMy heart is heavy for you as you are traveling a road that you have done before. My dear friend Beth Puffenberger recently gave me your blog address as have several others. We too have been on a journey with our youngest daughter, our fourth child, who was recently diagnosed with mitochondrial disease. We began our search for answers when she was diagnosed with failure to thrive at about eight weeks of age. She continued to lose or not gain weight for months, and then her little body started showing us other signs that indicated far greater issues besides growth. Thought our circumstances are very different, we are being educated in the science of mitochondrial medicine and are all too familiar with the testing and lab work you are describing in your posts. We too have a geneticist at CHOP as well as a metabolic doctor who frankly are very research driven. My husband and I are always torn when we are faced with yet another blood draw or procedure, we are always asking ourselves what Lucy will gain from having this or that done. Our faith has grown tremendously as we have learned to rely on GOD for direction. It is very obvious that you have an abundant faith and are a very dedicated family. Our family, All the Marletts, are praying for little Ava and your family. If there is anything that we can do, please feel free to contact us at ndmarlett@aol.com.
Sincerely,
Nicole Marlett
Our family blog is http://allthemarletts.blogspot.com
Just said a prayer for Ava and your family. I will keep praying for her strength and yours.
ReplyDeleteLove,
Melinda Watkins
(Melissa Ousdahl's mom)
We are praying continually for little Ava and for all of you. In Christ, Herb & Laurel Schrock
ReplyDeletePraying Isaiah with you. Praying for each of you today. Praying for the fundraiser this evening. Praying each of these prayers will please our heavenly Father and He will answer so many of our hearts in His perfect time and way with answers we can understand as good. Soaring is a glorious thing. May you each soar today with God. What a lift he gave you to see each of your girls smile today!
ReplyDeleteDear Amy and Allan,
ReplyDeletePraying for you is like my breathing. It is constant.
My heart is overflowing with love and care for you.
Love,
Merrie Lee