Monday, October 26, 2009

This weekend Ava had orange in her diaper. I thought it had something to do with how little amounts of breast milk she has been taking. On Saturday she slept all day and night. She would wake to eat but be too tired to do a good job. She was totally poky and freaking me out.

On Sunday she was AWAKE and hungry. That poor child works so hard to eat and it tires her right out. So she doesn't sleep and then is too tired to be efficient. She was up, with catnaps yesterday from 1-12am. She tried to eat off and on the whole time.

This morning, I woke her up to eat after 6 1/2 hours. She was raring to go. She took 1 1/2 ounces and then I needed to give her a break so I could get the other three ready for preschool drop off. She was grumpy and wanted to eat. She then had a great suck, but it was coming out too fast and she was spitting it out. I got about a half an ounce in her before we had to go. Ava fell asleep in the car. Got home, changed Elaina's diaper. Put Ava down and she woke up. She ate another 1 1/2 ounces and was satisfied. I then took her to the doctor to see if there is something else we can do.

I found out that the orange crystals in her diaper had nothing to do with a byproduct in her urine. It was from concentrated urine mixing with the chemicals in the diaper. Thank you Pampers. As annoyed as I was that I dropped 30 bucks for that appointment, I am glad that she is OK .

I find that I am always on alert, waiting for her to begin to fall to pieces. I don't want to be living like that but in a way I have to. If she begins to get symptomatic I need to get her care as soon as I can. Of course, we have no idea what symptoms would present themselves or how.

Hopefully we will have a better idea of what we are up against soon. For now we are trying to get Ava to get more calories with each feed. She is getting a half a scoop of formula per 2 ounces expressed breast milk. Hopefully this will help beef her up and give her more energy. Ava goes back to see her pediatrician on Thursday for another weight check. (That's sixty bucks in this week.) Ugh out copays are annoying. I am trying to get the Office Manager at the Doctor's office to give us a frequent flyer discount.

I called a different ENT who I was interested in seeing. That particular practice doesn't take our insurance. I was really hoping to see that physician. Maybe the frenulum issue is going to be resolved soon.

1 comment:

  1. I thought we were the only ones with rediculous copays! We drop $30 at every doc visit too...and $50 for a specialist. Its crazy!

    ReplyDelete